Jillian served on the Hopkins Centre Reference Group researching the support for ethical inclusion of people with acquired disability in research.
The final output was the Resource Guide “Deciding whether to participate in research: A community resource for Australians who live with a disability.”
Using the National Statement on Ethical Conduct in Human Research as a framework, this group explored peer reviewed and grey literature to articulate actionable strategies for optimum ethical engagement of people with acquired disability in research projects.
The group compared and contrasted literature derived strategies with recent consumer experience to produce best-practice frameworks that consumers, researchers and Human Research Ethics Committees could operationalise to optimally include people with acquired disability in research as collaborators in an ethical way.